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Bekah Bowman

Can't Steal My Joy

Home | Can't Steal My Joy Manifesto | I AM.

I AM.

Can't Steal My Joy Manifesto, Finding Joy, Finding Truth

Another 4 a.m wake up call my body isn’t ready for. I get up to meet my wide-awake son in the hallway. My head is spinning I’m so tired. I let everyone know if they only want ‘half a mama’ to continue to keep this up. (And yes, by everyone, I mean Ely and the dogs. Neither party cares, but I am frumpy.) I situate my little one with his breakfast and a Little Einstein episode and declare to anyone listening (read – no one) it’s time for mommy to go get an attitude adjustment.

I sit down, journal in hand, tears slipping down my face. I didn’t even know I was crying until I felt them. Sometimes they just appear like that. Weariness leaking out, I suppose. I sit to write, looking for what is in my soul that needs to be heard.

I write I. AM. SO. TIRED.

SO. TIRED.

I. AM.

“I. AM. ” Says God, a gentle reminder.

“I. AM. in your weary state.”

“I. AM. in disease progression.”

“I. AM. in your guilt, anger and meltdowns.”

“I. AM. in the midst of your aching missing.”

“I. AM. in the center of your questioning.”

“I. AM. before, here and now, and forever.”

“I. AM. and will not change.”

“I. AM. victory and redemption.”

“I. AM. here, yours, ENOUGH.”

Putting my Jesus eyes back on

My perspective is taken back to clarity. My blinders lifted – My Jesus eyes on. I can see His glorious, unlimited resources. His sustaining love that has made it’s home in me and taught me over and over I can trust His love. I am reminded of how high, wide, and deep His love is. And how deep His love-roots have grown down in me to give me strength. I am reminded He is at work within us always and has been for generations and generations. Ephesians 3:16-21

He met me years ago journeying Batten disease with Titus and showed me unfettered joy even then:

I knew I would say yes to God no matter what the road ahead looked like. Because inside, I felt whole and new. My circumstances were the same, but my God was enough. My life was chaotic and exhausting, but my heart found peace. I watched as an ugly disease stripped away my son, but my eyes saw beauty.

Can’t Steal My Joy: The Journey to a Different Kind of Brave – publishing fall of 2019

I Am. Fullness complete for you and I, nothing less and nothing more we could possibly add. I Am wraps up our brokenness and calls it redeemed- declares victory even as we live in the middle of the battle. For that, we are gifted resolve. To keep on keeping on. Not in senseless drudgery, but in Joyous Victory.

I am thankful for this gentle reminder turned monumental perspective shift. I am still tired. But I am His and He is I Am. So I cling again to the One who is the Vine. The Bread of Life, the First and the Last. The Way, the Truth and the Life. I. AM.

Thanks for listening,

Bekah

To receive encouragement and resources with a BIG dose of JOY, sign up here. When you sign up, you get the Can’t Steal My Joy Connection Guide, a companion piece to the book Can’t Steal My Joy, FREE!

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June 11, 2019 · 7 Comments

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Comments

  1. Ruth Shaw says

    June 11, 2019 at 10:02 am

    What a great Mom and writer you are! Your words are like pictures and emotions melted together ~ so easy to see and feel. Beautiful. Please know that for several weeks I have been praying for Ely at 5:30 each morning and night. It never dawned on me that you and Ely might be up that early!! Blessings galore. Love, Skeeter

    Reply
    • bbowman says

      June 12, 2019 at 6:14 am

      oh Skeeter! Thank you for your prayers! I imagine life sometimes like pushing a boulder up a mountain. Each time I hear of us being lifted in prayer, the boulder gets a bit easier to push because others have surrounded us and are pushing it with us. Its their boulder too and together we can do this broken journey together. Thank you for your love and prayers Skeeter!

      Reply
  2. Karen Golde says

    June 11, 2019 at 9:29 am

    Bekah, hugs, praises prayers.
    Thank you so much.
    I AM is exactly what I needed today.
    You being such clarity to your walk with joy and praise.
    Praying continuously.

    Reply
    • bbowman says

      June 12, 2019 at 6:11 am

      So thankful this message resonates with others as well. Love you!

      Reply
  3. Pamela Wheeler says

    June 11, 2019 at 9:24 am

    Bekah, you say Battens is progressing. Is it radically progressing? It make me sick to hear this.
    I’m so excited about your book. It’s amazing as to how your life takes different roads but at each turn you can still say I AM. I love you so much and am to very honored to have you in my life.

    Reply
    • Courtney Lundsett says

      June 12, 2019 at 12:08 am

      Do a quick search for Late Infantile Batten Disease. That is what Titus had and what Ely is still battling. For parents whose kids are in this struggle, talking about the symptoms and progression can be emotionally taxing.

      Reply
    • bbowman says

      June 12, 2019 at 6:09 am

      Hi Grammy Pammy, Ely’s progression is much, much slower. And while he is thriving in many ways, the disease continues to progress in other ways. It’s a long haul journey that most days I am incredibly thankful for with our little guy, but it’s teamed up with moments of just not enough to give it all at times. Love you!

      Reply

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Hey! It is nice to meet you!

Bekah Bowman

Hey, I’m Bekah and I’m so glad you’re here! It’s my mission to help you find joy, belonging, and hope in Jesus. I wear many hats, but some of my favorite hats are being a coach’s wife and a mom to boys. Read more…

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We often make breakfast for dinner on Sunday eveni We often make breakfast for dinner on Sunday evenings. Last night's meal was pumpkin waffles.
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My waffle iron beeped, letting me know it was done cooking the first batch. As I opened the lid, I winced as the waffles stuck to both sides of the iron. I forgot to spray. Shoot.
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And then, I remembered the homemade whipped cream and chocolate chips I had in my possession and images of stuffed waffles started floating through my mind.
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May you see your failures this week as an opportunity for stuffed waffles. 🤜🤛 #HappyMonday!
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Infusion day, which means a much needed refill on Infusion day, which means a much needed refill on brain juice! Love this sweet little boy. 

A couple nights ago I had an incredible dream about this bubba of mine. 

In my dream, Ely was just like he is now-- affected by batten disease, blind, not much verbal language ability, etc. 

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Then, tears started to roll down his face and he said, "mama, a lot of days, my body feels really good. But some days, my body feels like it's going to die." Well, I had tears rolling down my face as I wiped his away and said, "I know, buddy. I am so sorry you have to fight this disease." 

It was sad, but also an oddly intimate and comforting dream. I can't explain fully the gift this dream was. I have vivid dreams often, but this one was so different. No wonky random side stories, or unexplainable storylines when I woke up. It was as real as the scene in front of me now with Ely in a hospital bed infusing. 

Maybe a gift from God that was a glimpse into the mind of my son whose thoughts, feelings, and understandings sometimes feel so locked away and inaccessible? I don't know, but it's been on my mind since early Saturday morning. 

#adayinthelifeofEly #infusionday #giftfromGod #rarediseaselife #CLN2 #BattenDisease #biomarin #brineura #thankfulfortreatment
Anyone else's kids obsessed with Little Blue Truck Anyone else's kids obsessed with Little Blue Truck? I love when this cool dude helps me "read" his favorite stories. 😍
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Happy 16th Anniversary to my hubsters @dtbtrack20 Happy 16th Anniversary to my hubsters @dtbtrack20 ! Thanks to our awesome parents, we were able to get away for a few days to Southern Utah! Wow, it's beautiful down here!
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Yesterday was a day full of yeses as we hiked through the slots of Buckskin Gulch. It was crowded at the beginning, but once people saw the freezing cold water they'd have to wade through (some up to mid-thigh for this shorty 🙋‍♀️) the crowds thinned fast. We only saw a few people after that. We stood at the first large puddle (knee high) that we'd have to wade through and thought, "We get to say yes to this today. We didn't come this far to turn around, so let's go for it."
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I'm so glad we did! Yesterday was full of laughs, gorgeous views and stunning scenery, freezing cold water (brought back ice bath memories from college soccer), and a bit of a metaphor for our marriage-- hard treks, some painful (think walking barefoot on rocks), and joy!
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If you know me, even just a little bit, you know of my relentless pursuit of Jesus. But in my darkness when I couldn't pursue anymore,  I actually learned of His relentless pursuit of me.
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I'm reminded of His promise in John 16:33 where he says "Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world." He has overcome darkness. And that is why I run a little harder into it, because I'm not going to find permanent desolation there, but rather redemptive victory.
We were out on a walk today when a plane flew over We were out on a walk today when a plane flew overhead. I noticed Ely grow really still and lean toward the sound.
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I stopped walking so he could listen. "Ane," he told me softly. He sat there listening long enough, I had time to open my camera and capture this moment.
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I want to be better about listening like that. Leaning in, with intention, unhurried, no agenda, just listening.
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