• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Home
  • Can’t Steal My Joy — The Book
  • About
  • Speaking
  • Featured On
  • Blog
    • Our Story Part 1- The Beginning
    • Our Story Part 2- Receiving the diagnosis
    • Our Story Part 3- Journeying a different story than planned
    • Our Story Part 4- Learning to live after loss
    • Finding Joy
    • Living With Grief
    • Finding Truth
    • Living In Community
  • Join
  • Nav Social Menu

    • Facebook
    • Instagram

Bekah Bowman

Can't Steal My Joy

Home | Our Story Part 4- Learning to live after loss | Spaghetti arms and sandcastles

Spaghetti arms and sandcastles

Finding Truth, Living With Grief, Our Story Part 4- Learning to live after loss

Yesterday was Ely’s 60th infusion. SIXTY! I remember when we were waiting on pins and needles to be invited into the trial. That waiting period felt like forever. And then, like a snap of the fingers, 60. We are adjusting to our new treatment site along with everything else. Yesterday during our treatment, a new friend of ours stopped by to visit. She happens to work at the hospital so we get to see her fairly often on our infusion stays and it’s always a treat.

I had learned in previous conversations that she was a gymnast and so we got to talking about gymnastics again. I shared jokingly that I remember going to gymnastics as a really young girl only a handful of times. In one of my first few classes (it was a long time ago, so the memory is blurred), I was trying to hold my body weight up with my arms. I failed. Miserably. Our teacher, probably trying to be funny, called me “Spaghetti Arms”. And with that, gymnastics was over for me. Because I was now Spaghetti Arms. I have held that as an identity of myself to this day when I think about ‘Bekah and gymnastics’.

As I drove Ely home last night from our long day, that conversation came back to me. What I had always thought of as a silly little story, in that moment, struck me as prophetic. Because in that small interaction where I perceived myself to be criticized and not good enough, I ran away. There was no convincing me to go back to gymnastics after that. It carved such influence on me that I, Bekah, was not good enough. And when I think back through my growing years, I see that tendency played out over and over and over.

But then I also remember a few deeply influential characters in my life who saw potential and affirmed that in me. I think of my assistant coach of my competitive soccer team my sophomore year of high school. Coach Sammy was his name. For some reason, he chose to affirm, encourage and empower me. When Coach Sammy told me who I was, I rose to be that person because I believed him. I remember one particular game where I was warming up before we took the field. As I ran around the perimeter of the field to the opposite team’s goal, I pictured exactly how I was going to score on that goal and where I would shoot the ball. That day I scored not once, not twice, but three times into that goal. Coach Sammy was going to be late to the game, but when he got there, I ran over and told him what had happened. He beamed with pride and responded with, “That doesn’t surprise me one bit. You can do whatever you set your mind to.”

As I look back at all my different accomplishments and failures, I see my identity beaming with pride or taking a hit. I thought it normal, actually, to find my identity in what I did, what I accomplished, who I became. And as I grew older, got married, became a mom to two boys and then had part of that identity get severely stripped away from me, I got lost. It seemed that as I tried on each little identity, there was something that didn’t quite fit because I was now wearing grief and grief is kinda… lumpy. My identity clothing didn’t fall nicely over me like it used to. Soccer player. Student. Wife. Children’s Pastor. Mom. Happy person. Dependable friend. Always good for a smile. Straight and narrow. All those identities now felt lumpy.

This has been an interesting year for me. I have actually been doing a lot of soul searching and trying to understand who Bekah is. I didn’t expect to be in this soul-searching place in my mid-thirties. I guess I thought that’s what you spend your 20’s doing and then 30’s bring stability and confidence. Ha! But I know I’m not alone in this. I was just texting with a friend yesterday who shared the very same struggle and she is a 30-something too! Hmmm…

All through this life of mine, I’ve had this great insecurity of not being good enough. It translated as a fear of failure, one that caused me to take the safe road. To second guess myself and not put myself out there. To talk myself down to look like a failure before I actually was one so it didn’t surprise anyone, especially myself. It all came down to not believing that I, Bekah, was created as a beloved daughter of a King and that simply made me enough. So, my life has been full of overachieving and competitiveness and then on the flip side, stepping down from a challenge and choosing not to show my true colors for fear they would be ridiculed.

As we journey through our lives, we all pick up various identities along the way. For me, I was a soccer player, a student, a girlfriend, coffee lover. That changed to wife, children’s pastor, mom. Coffee lover remained. Then instead of growing into new identities, I felt identities taken from me. Career paths fell off as my need to stay home with my boys grew. I lost my oldest son, the boy who made me a mom, to a fatal disease. My identities shifted as I picked up griever, fighter, endurer, advocate. These were not identities I set out on life’s adventure to hold. Certainly not from this broken place, anyway. From a mountain top of success, sure! Bring it on… but in the valley of the shadow of death? Come on now.

But what this soul-searching has brought me to realize (and I have to give credit to Ted Dekker for this analogy) is that all of life is made up of building these sandcastles. My career, my relationships, my skill-sets and goals I set out to achieve – each one is its own unique sandcastle. And the thing with sandcastles is that they are temporary. Some are simple, some elaborate and detailed. Some we don’t spend much time on and some, we spend most of our lives building. We can choose to build them for the glory of God or for the glory of ourselves. And when the roaring waves come crashing up and over them, some we cheer to be taken down, others we fight to salvage, digging trenches to keep the water at bay. And some we grieve at the unstoppable loss as our sandcastles get swallowed up in the big wide blue. What Dekker shared (that I actually knew deep down but was transforming for me as I became awake to this) was that when those sandcastles get destroyed, the person who built them is not. Right? When you are on the beach, building your castle and the waves wash it away, you remain. This was an aha moment for me that I desperately needed to hear. When my identities get built up or washed away, the very core of me, of who I am and always will be, remains.

But who is that? (Cue inspiring piano music.)

I am a daughter of Yahweh, God- who created me because His glory and love was spilling out of Him so much so that He couldn’t hold it in. You and I are a result of His goodness, His love, His creativity, His wonder and mystery. We, without adding anything more, are purpose.

We are SOMEBODY because we are His. We are not these temporary sandcastles, these identities that get taken away by the shadows of this world. We are eternal. So, I am free to enter back in to this world, holding grief and whatever else feels heavy and ugly knowing that it isn’t me. It’s a sandcastle. And in the building of it, I see beauty that I previously would’ve called ugly and shunned it because I would’ve been afraid of how it defined me. Instead, I can see how those broken, ugly places woo me and teach me and bring me back round to who I really am.

His. Loved. Redeemed. Enough. Period.

(Check out the article I wrote for HomeFront Magazine for their January 2019 issue on Identity with this sandcastle analogy. There is an activity you can do with your kids to help get the conversation going with them on Whose they are and who they are! 😉)

one of our last beach-walks before we moved

Thanks for listening,

Bekah

Share104
Pin
Tweet
Email
Print
106Shares

January 11, 2019 · 6 Comments

Previous Post: « My should’ves
Next Post: Hero Series: When life gives you lemons »

Reader Interactions

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Recipe Rating




subscribe without commenting

Comments

  1. June Pimpo says

    January 12, 2019 at 4:10 pm

    Yes yes yes. True words that run deep with meaning and strength. Amen. amen.

    Reply
    • bbowman says

      January 13, 2019 at 7:10 am

      Thank you June. So thankful for God’s loving truth and persistent goodness and redemption in all our stories.

      Reply
  2. Steve Phillips says

    January 12, 2019 at 11:55 am

    Bekah, thank you for once again putting your experience to words for all of us. Looking within I see these same dynamics at work in me through different circumstances. My sandcastles are different from yours, but their nature is the same. I appreciate your reflections and drawing me back to the core realization of my identity apart from any achievement. I’m intrigued by your idea of identity as purpose–I’m thinking that one through. You are a gift.

    Reply
    • bbowman says

      January 13, 2019 at 7:07 am

      Yes! That one struck me too. While I was writing, it was as if the Spirit laid that one in my lap… we are purpose. We are a manifestation of his glory, his character- a creation made in his image and done so with great love. To simply be created is to declare his majesty, glory, his creativity, his love… and this holds great purpose! So much to sit in with this. Sending our love to you guys!!

      Reply
  3. Pam Tangbakken says

    January 12, 2019 at 6:53 am

    Good for you! Wonderful Website! God can use everything you have and will go through for His glory. Move forward boldly sister.

    Reply
    • bbowman says

      January 13, 2019 at 6:55 am

      Thank you for the encouragement Pam! Grateful to be part of HIS story!! 💛

      Reply

Primary Sidebar

Hey! It is nice to meet you!

Bekah Bowman

Hey, I’m Bekah and I’m so glad you’re here! It’s my mission to help you find joy, belonging, and hope in Jesus. I wear many hats, but some of my favorite hats are being a coach’s wife and a mom to boys. Read more…

  • Facebook
  • Instagram

Search by Category

We often make breakfast for dinner on Sunday eveni We often make breakfast for dinner on Sunday evenings. Last night's meal was pumpkin waffles.
.
My waffle iron beeped, letting me know it was done cooking the first batch. As I opened the lid, I winced as the waffles stuck to both sides of the iron. I forgot to spray. Shoot.
.
And then, I remembered the homemade whipped cream and chocolate chips I had in my possession and images of stuffed waffles started floating through my mind.
.
May you see your failures this week as an opportunity for stuffed waffles. 🤜🤛 #HappyMonday!
.
.
.
#perspectiveshift #kitchenblunders #cantstealmyjoy
Infusion day, which means a much needed refill on Infusion day, which means a much needed refill on brain juice! Love this sweet little boy. 

A couple nights ago I had an incredible dream about this bubba of mine. 

In my dream, Ely was just like he is now-- affected by batten disease, blind, not much verbal language ability, etc. 

Out of nowhere in this dream, he started telling me, in full sentences, all the things he was observing and understanding about the world around him. I was baffled by all that he could understand, and in my dream, it felt clear that I was learning something true about my son in real time. 

Then, tears started to roll down his face and he said, "mama, a lot of days, my body feels really good. But some days, my body feels like it's going to die." Well, I had tears rolling down my face as I wiped his away and said, "I know, buddy. I am so sorry you have to fight this disease." 

It was sad, but also an oddly intimate and comforting dream. I can't explain fully the gift this dream was. I have vivid dreams often, but this one was so different. No wonky random side stories, or unexplainable storylines when I woke up. It was as real as the scene in front of me now with Ely in a hospital bed infusing. 

Maybe a gift from God that was a glimpse into the mind of my son whose thoughts, feelings, and understandings sometimes feel so locked away and inaccessible? I don't know, but it's been on my mind since early Saturday morning. 

#adayinthelifeofEly #infusionday #giftfromGod #rarediseaselife #CLN2 #BattenDisease #biomarin #brineura #thankfulfortreatment
Anyone else's kids obsessed with Little Blue Truck Anyone else's kids obsessed with Little Blue Truck? I love when this cool dude helps me "read" his favorite stories. 😍
.
.
.
#adayinthelifeofEly #littlebluetruck #rarediseasefamily #specialneedsmom #disabilityawareness #cln2 #battendisease #miracleboy #differentnotless #rarediseaselife #team4titusely
Woke up this morning in a funk. Couldn't put my fi Woke up this morning in a funk. Couldn't put my finger on it right away, but felt it in my bones before I remembered in my mind.
.
5 years ago today we gathered for Titus's celebration of Life service.
.
The ache remains. The tears don't fall all the time like they used to, but it isn't hard to summon them.
.
I sat in my car in the parking lot at Ely's school, tears rising. I took a deep breath, threw my shifter into reverse (manual stick driver here!), and backed out. As I moved out of the parking lot, this tree captured all my attention.
.
The life, the death, the beauty in it all. This is life. This is my life. And the most hope-filled part of it all is the promise of new life in Jesus and his willingness to do life with me right now.
.
So I looked like a knucklehead pausing in the middle of school drop off to capture a picture of a ho-hum insignificant tree to remind me of Life. 💛
.
"In this world, you will have trouble. But take heart, for I have overcome the world." ~Jesus
Happy 16th Anniversary to my hubsters @dtbtrack20 Happy 16th Anniversary to my hubsters @dtbtrack20 ! Thanks to our awesome parents, we were able to get away for a few days to Southern Utah! Wow, it's beautiful down here!
.
Yesterday was a day full of yeses as we hiked through the slots of Buckskin Gulch. It was crowded at the beginning, but once people saw the freezing cold water they'd have to wade through (some up to mid-thigh for this shorty 🙋‍♀️) the crowds thinned fast. We only saw a few people after that. We stood at the first large puddle (knee high) that we'd have to wade through and thought, "We get to say yes to this today. We didn't come this far to turn around, so let's go for it."
.
I'm so glad we did! Yesterday was full of laughs, gorgeous views and stunning scenery, freezing cold water (brought back ice bath memories from college soccer), and a bit of a metaphor for our marriage-- hard treks, some painful (think walking barefoot on rocks), and joy!
A few weeks ago, I found myself on an impromptu ru A few weeks ago, I found myself on an impromptu run. Ran toward this beautiful sunset for the first half. Not the best I've ever seen,  but a beauty nonetheless.
.
Then it was time to turn around and race darkness home. It hit me that my run felt a little like my life. We had to turn from the beauty we thought was ahead of us, and instead run head on into darkness.
.
If you know me, even just a little bit, you know of my relentless pursuit of Jesus. But in my darkness when I couldn't pursue anymore,  I actually learned of His relentless pursuit of me.
.
I'm reminded of His promise in John 16:33 where he says "Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world." He has overcome darkness. And that is why I run a little harder into it, because I'm not going to find permanent desolation there, but rather redemptive victory.
We were out on a walk today when a plane flew over We were out on a walk today when a plane flew overhead. I noticed Ely grow really still and lean toward the sound.
.
I stopped walking so he could listen. "Ane," he told me softly. He sat there listening long enough, I had time to open my camera and capture this moment.
.
I want to be better about listening like that. Leaning in, with intention, unhurried, no agenda, just listening.
This error message is only visible to WordPress admins
There has been a problem with your Instagram Feed.

Copyright © 2024 · Bekah Bowman · All Rights Reserved