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Bekah Bowman

Can't Steal My Joy

Privacy Policy

Can’t Steal My Joy Privacy Policy

This Privacy Policy describes how your personal information is collected, used, and shared when you visit or make a purchase from https://bekahbowman.com (the “Site”).

PERSONAL INFORMATION WE COLLECT

When you visit the Site, we automatically collect certain information about your device, including information about your web browser, IP address, time zone, and some of the cookies that are installed on your device. Additionally, as you browse the Site, we collect information about the individual web pages or products that you view, what websites or search terms referred you to the Site, and information about how you interact with the Site. We refer to this automatically-collected information as “Device Information.”

We collect Device Information using the following technologies:

  • “Cookies” are data files that are placed on your device or computer and often include an anonymous unique identifier. For more information about cookies, and how to disable cookies, visit https://www.allaboutcookies.org.
  • “Log files” track actions occurring on the Site, and collect data including your IP address, browser type, Internet service provider, referring/exit pages, and date/time stamps.
  • “Web beacons,” “tags,” and “pixels” are electronic files used to record information about how you browse the Site.

Additionally when you make a purchase or attempt to make a purchase through the Site, we collect certain information from you, including your name, billing address, shipping address, payment information (including credit card numbers, email address, and phone number. We refer to this information as “Order Information.”

Additionally, when you sign up for the newsletter, we collect the information received from you on our mailing lists. These are not sold or given to any other parties and used only to send you emails you have signed up for. You can easily unsubscribe via the link given at the bottom of the newsletter should you want to discontinue receiving those. Your information is kept in our system unless you personally request it be deleted permanently, but will be marked inactive upon unsubscribing.

When we talk about “Personal Information” in this Privacy Policy, we are talking both about Device Information and Order Information.

HOW DO WE USE YOUR PERSONAL INFORMATION?

We use the Order Information that we collect generally to fulfill any orders placed through the Site (including processing your payment information, arranging for shipping, and providing you with invoices and/or order confirmations). Additionally, we use this Order Information to:
Communicate with you;
Screen our orders for potential risk or fraud; and
When in line with the preferences you have shared with us, provide you with information or advertising relating to our products or services.

We use the Device Information that we collect to help us screen for potential risk and fraud (in particular, your IP address), and more generally to improve and optimize our Site (for example, by generating analytics about how our customers browse and interact with the Site, and to assess the success of our marketing and advertising campaigns).

SHARING YOUR PERSONAL INFORMATION

We share your Personal Information with third parties to help us use your Personal Information, as described above. For example, we also use Google Analytics to help us understand how our customers use the Site–you can read more about how Google uses your Personal Information here: https://www.google.com/intl/en/policies/privacy/. You can also opt-out of Google Analytics here: https://tools.google.com/dlpage/gaoptout.

Finally, we may also share your Personal Information to comply with applicable laws and regulations, to respond to a subpoena, search warrant or other lawful request for information we receive, or to otherwise protect our rights.

DO NOT TRACK
Please note that we do not alter our Site’s data collection and use practices when we see a Do Not Track signal from your browser.

YOUR RIGHTS
If you are a European resident, you have the right to access personal information we hold about you and to ask that your personal information be corrected, updated, or deleted. If you would like to exercise this right, please contact us through the contact information below.

Additionally, if you are a European resident we note that we are processing your information in order to fulfill contracts we might have with you (for example if you make an order through the Site), or otherwise to pursue our legitimate business interests listed above. Additionally, please note that your information will be transferred outside of Europe, including to Canada and the United States.

DATA RETENTION
When you place an order through the Site, we will maintain your Order Information for our records unless and until you ask us to delete this information.

CHANGES
We may update this privacy policy from time to time in order to reflect, for example, changes to our practices or for other operational, legal or regulatory reasons.

CONTACT US
For more information about our privacy practices, if you have questions, or if you would like to make a complaint, please contact us by e-mail at [email protected] or by mail using the details provided below:

Last Modified: October 4, 2019

We often make breakfast for dinner on Sunday eveni We often make breakfast for dinner on Sunday evenings. Last night's meal was pumpkin waffles.
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My waffle iron beeped, letting me know it was done cooking the first batch. As I opened the lid, I winced as the waffles stuck to both sides of the iron. I forgot to spray. Shoot.
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And then, I remembered the homemade whipped cream and chocolate chips I had in my possession and images of stuffed waffles started floating through my mind.
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May you see your failures this week as an opportunity for stuffed waffles. 🤜🤛 #HappyMonday!
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#perspectiveshift #kitchenblunders #cantstealmyjoy
Infusion day, which means a much needed refill on Infusion day, which means a much needed refill on brain juice! Love this sweet little boy. 

A couple nights ago I had an incredible dream about this bubba of mine. 

In my dream, Ely was just like he is now-- affected by batten disease, blind, not much verbal language ability, etc. 

Out of nowhere in this dream, he started telling me, in full sentences, all the things he was observing and understanding about the world around him. I was baffled by all that he could understand, and in my dream, it felt clear that I was learning something true about my son in real time. 

Then, tears started to roll down his face and he said, "mama, a lot of days, my body feels really good. But some days, my body feels like it's going to die." Well, I had tears rolling down my face as I wiped his away and said, "I know, buddy. I am so sorry you have to fight this disease." 

It was sad, but also an oddly intimate and comforting dream. I can't explain fully the gift this dream was. I have vivid dreams often, but this one was so different. No wonky random side stories, or unexplainable storylines when I woke up. It was as real as the scene in front of me now with Ely in a hospital bed infusing. 

Maybe a gift from God that was a glimpse into the mind of my son whose thoughts, feelings, and understandings sometimes feel so locked away and inaccessible? I don't know, but it's been on my mind since early Saturday morning. 

#adayinthelifeofEly #infusionday #giftfromGod #rarediseaselife #CLN2 #BattenDisease #biomarin #brineura #thankfulfortreatment
Anyone else's kids obsessed with Little Blue Truck Anyone else's kids obsessed with Little Blue Truck? I love when this cool dude helps me "read" his favorite stories. 😍
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#adayinthelifeofEly #littlebluetruck #rarediseasefamily #specialneedsmom #disabilityawareness #cln2 #battendisease #miracleboy #differentnotless #rarediseaselife #team4titusely
Woke up this morning in a funk. Couldn't put my fi Woke up this morning in a funk. Couldn't put my finger on it right away, but felt it in my bones before I remembered in my mind.
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5 years ago today we gathered for Titus's celebration of Life service.
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The ache remains. The tears don't fall all the time like they used to, but it isn't hard to summon them.
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I sat in my car in the parking lot at Ely's school, tears rising. I took a deep breath, threw my shifter into reverse (manual stick driver here!), and backed out. As I moved out of the parking lot, this tree captured all my attention.
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The life, the death, the beauty in it all. This is life. This is my life. And the most hope-filled part of it all is the promise of new life in Jesus and his willingness to do life with me right now.
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So I looked like a knucklehead pausing in the middle of school drop off to capture a picture of a ho-hum insignificant tree to remind me of Life. 💛
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"In this world, you will have trouble. But take heart, for I have overcome the world." ~Jesus
Happy 16th Anniversary to my hubsters @dtbtrack20 Happy 16th Anniversary to my hubsters @dtbtrack20 ! Thanks to our awesome parents, we were able to get away for a few days to Southern Utah! Wow, it's beautiful down here!
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Yesterday was a day full of yeses as we hiked through the slots of Buckskin Gulch. It was crowded at the beginning, but once people saw the freezing cold water they'd have to wade through (some up to mid-thigh for this shorty 🙋‍♀️) the crowds thinned fast. We only saw a few people after that. We stood at the first large puddle (knee high) that we'd have to wade through and thought, "We get to say yes to this today. We didn't come this far to turn around, so let's go for it."
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I'm so glad we did! Yesterday was full of laughs, gorgeous views and stunning scenery, freezing cold water (brought back ice bath memories from college soccer), and a bit of a metaphor for our marriage-- hard treks, some painful (think walking barefoot on rocks), and joy!
A few weeks ago, I found myself on an impromptu ru A few weeks ago, I found myself on an impromptu run. Ran toward this beautiful sunset for the first half. Not the best I've ever seen,  but a beauty nonetheless.
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Then it was time to turn around and race darkness home. It hit me that my run felt a little like my life. We had to turn from the beauty we thought was ahead of us, and instead run head on into darkness.
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If you know me, even just a little bit, you know of my relentless pursuit of Jesus. But in my darkness when I couldn't pursue anymore,  I actually learned of His relentless pursuit of me.
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I'm reminded of His promise in John 16:33 where he says "Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world." He has overcome darkness. And that is why I run a little harder into it, because I'm not going to find permanent desolation there, but rather redemptive victory.
We were out on a walk today when a plane flew over We were out on a walk today when a plane flew overhead. I noticed Ely grow really still and lean toward the sound.
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I stopped walking so he could listen. "Ane," he told me softly. He sat there listening long enough, I had time to open my camera and capture this moment.
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I want to be better about listening like that. Leaning in, with intention, unhurried, no agenda, just listening.
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